At Patient Connect, we bridge the gap between patients and research studies. Our mission is to advance healthcare by partnering with research organizations to accelerate the development of tomorrow’s medical treatments. 

 By joining a research study, you may gain access to potential new treatments, some of which could prove more effective than current options. Just as past participants helped shape the treatments available today, your involvement can create a lasting impact for patients facing the same condition in the future.

Participation isn’t limited to clinical trials. By taking part in focus groups, web-based calls, or surveys, you become an advocate, sharing your voice to improve medical care, educational resources, treatment approaches, and support systems for patients and families everywhere. 

Last Updated: [9/25/2025]

Patient Connect (“we,” “our,” or “us”) is committed to protecting the privacy and confidentiality of personal information, including any health-related data collected in the course of market research or clinical study recruitment. We adhere to applicable federal and state privacy laws, including the Health Insurance Portability and Accountability Act of 1996 (“HIPAA”), where applicable.

By registering or participating in a study, you acknowledge and consent to the practices described in this Privacy Policy.

The information we collect depends on the study requirements and may include:

• Contact Information: Name, email address, phone number, and mailing address (for study communication or incentive distribution).
   
• Demographic Information: Age, gender, or other information relevant to eligibility.
   
• Protected Health Information (PHI): Only if required for study screening or participation, and only with your express consent. Examples may include medical history, diagnoses, or laboratory results.
   

We will never collect more information than is necessary for the study purpose.

We may use your information to:

• Screen for eligibility in research or clinical studies.
   
• Communicate with you regarding study participation opportunities.
   
• Process incentive payments.
   
• Provide de-identified or aggregated data to sponsors for research purposes.
   

If PHI is collected, it will only be used and disclosed in compliance with HIPAA and other applicable laws.

• Third Parties: We do not sell or resell your personally identifiable information. Limited disclosure may occur to study sponsors, CROs, or authorized vendors, but only in a de-identified or aggregated format unless you have provided explicit written consent.
   
• Legal Obligations: We may disclose information if required by law, subpoena, regulation, or court order.
   
• With Your Authorization: We will never disclose PHI outside of Patient Connect without your written authorization, except as permitted or required by law.
   

We employ administrative, technical, and physical safeguards to protect your personal information and PHI against loss, misuse, or unauthorized access. Where HIPAA applies, we act as a “covered entity” or “business associate,” and maintain compliance with all applicable requirements.

You have the right to:

• Access and request a copy of the personal data we maintain about you.
   
• Request correction of inaccurate information.
   
• Request that we delete your information (subject to legal or contractual limitations).
   
• Withdraw consent to future contact at any time.
   

For HIPAA-covered data, you also have the right to request restrictions on disclosures and to receive an accounting of disclosures made.

When registering, we may request your permission to contact you about future opportunities. If at any time you no longer wish to be contacted, you may opt out by:

• Phone: 760-420-3403
   
• Mail:
  Patient Connect
  825 College Blvd., Suite 102 – PMB 416
  Oceanside, CA 92057
   

Requests will be processed in compliance with applicable privacy and data protection laws.

We retain personal information and PHI only for as long as necessary to fulfill the purposes described above or as required by law, regulation, or contractual obligations. After this period, information will be securely deleted or de-identified.

We may update this Privacy Policy from time to time to reflect changes in law, regulation, or business practices. Updates will be posted on this page with a revised “Last Updated” date.

For questions regarding this Privacy Policy, HIPAA compliance, or our data practices, please contact:

Patient Connect
825 College Blvd., Suite 102 – PMB 416
Oceanside, CA 92057
Phone: 760-420-3403